ERN-EuroBloodNet
 
Newsletter - Let's celebrate World Thrombosis Day 2023 together!
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
Participate in the ERN-EuroBloodNet actions focused on Venous Thrombosis and Arterial Thrombosis in Pediatric Patients!
 
 

Today, October 13, is World Thrombosis Day (#WTDay23)! The ERN-EuroBloodNet invites you to participate in the actions being developed in the ERN to tackle Venous Thrombosis and Arterial Thrombosis in Pediatric Patients.

Thromboembolic events are increasingly recognized in children. Nevertheless, pediatric thrombosis is still rare and differs significantly in epidemiology compared to adult thrombosis.

As pediatric thrombosis is a rare disease, and international collaboration is essential to improve research and thus evidence for management, we aim to set up a working group in the non-oncological hub of ERN-EuroBloodNet.

  1. As a starting point, ERN-EuroBloodNet experts Heleen van Ommen (Erasmus MC: University Medical Center Rotterdam) and Rubén Berrueco, (Hospital de Sant Joan de Déu, Barcelona) are coordinating a European mapping exercise to identify the prevalence, epidemiology, and the current management options of these complications across Europe.
  2. Furthermore, we are interested in whether you are willing to participate in the future ERN-EuroBloodNet working group thrombosis.

We would appreciate it if you collaborate on this European mapping. This survey will take you a few minutes and will be open until October 20th. If you wish to be updated on the results of the analysis and other related activities in the field, please provide your contact details, alternatively, you can answer anonymously.

 

 
 
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