List of Clinical Practice Guidelines (CPG) and Clinical Decision Support Tools (CDST: clinical consensus statements or consensus recommendations), developed by the ERN-EuroBloodNet involving at least two Health Care Providers from two different Member States within the ERN. All of them include the acknowledgement of the ERN, for diseases within the scope of the ERN where no guidelines existed previously and be according to an evidence-based recognized methodology.
| Publication Date |
Title |
Authors: ERN-EuroBloodNet Experts and their affiliations |
Member States Involved |
| October 2018 |
Newborn screening for sickle cell disease in Europe: recommendations from a Pan-European Consensus Conference
|
Stephan Lobitz (Gemeinschaftsklinikum Mittelrhein gGmbH), Paul Telfer ( Barts Health NHS Trust), Carolina Backman Johansson (Karolinska University Hospital), Catherine Badens (Assistance Publique-Hôpitaux de Marseille), Celeste Bento (Centro Hospitalar e Universitário de Coimbra, EPE), Marianne de Montalembert (Assistance Publique-Hôpitaux de Paris, Hôpital Necker-Enfants Malades), Béatrice Gulbis (CUB-Hôpital Erasme), Baba Inusa (Guy's and St Thomas' NHS Foundation Trust), Marina Klenthous (Archbishop Makarios III Hospital), Joachim Kunz (Universitätsklinikum Heidelberg), Lisa Langabeer (Children's Health Ireland), Corrina McMahon (Children's Health Ireland), Laura Sainati (AO Padua), Raffaella Colombatti (AO Padua) |
Belgium, Cyprus, France, Germany, Ireland, Italy, Portugal, Sweden, The Netherlands and Switzerland |
| January 2019 |
Addressing the diagnostic gaps in pyruvate kinase deficiency: Consensus recommendations on the diagnosis of pyruvate kinase deficiency
|
Paola Bianchi (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Elisa Fermo (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan),Wilma Barcellini (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Tabita Magalhães Maia (Centro Hospitalar e Universitário de Coimbra, EPE), Maria del Mar Mañu-Pereira (Vall d'Hebron Barcelona Hospital Campus), Serge Pissard (Assistance Publique-Hôpitaux de Paris, Hôpital Henri-Mondor), Eduard van Beers (University Medical Center Utrecht) and Richard van Wijk (University Medical Center Utrecht) |
France, Italy, Portugal, Spain and The Netherlands
|
| April 2022 |
Recommendations for diagnosis and treatment of methemoglobinemia
|
Achille Iolascon (AOU Federico II - Naples), Paola Bianchi (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Immacolata Andolfo (AOU Federico II - Naples), Roberta Russo (AOU Federico II - Naples), Wilma Barcellini (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Elisa Fermo (Foundation IRCCS Ca'Granda Ospedale Maggiore Policlinico, Milan), Stefano Ghirardello (Foundation IRCCS Polyclinic San Matteo, Pavia), Richard Van Wijk (University Medical Center Utrecht), Andreas Kulozik (Universitätsklinikum Heidelberg), Lucia De Franceschi (AOUI Verona), Antonella Gambale (AOU Federico II - Naples), Mariane De Montalembert (Assistance Publique-Hôpitaux de Paris, Hôpital Necker-Enfants Malades), Gian Luca Forni (E.O. Ospedali Galliera, Genova) and Cornelis L. Harteveld (Leiden University Medical Center) |
France, Germany and Italy |
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