Topic on Focus for Patients Organizations

ERN-EuroBloodNet is aware of the high impact that the online activities have nowadays, especially in the area of education. Interactive video sessions provided by an expert physicians or a patient advocate in the field, allow patients and caregivers to learn highly specialized knowledge without the need to travel for following onsite trainings. In addition, webinars allow tackling questions gathered from the audience in real time, providing the perfect environment to benefit from the most outstanding experts in the field. 

ERN-EuroBloodNet Coordination team together with health professionals leading a specific clinical domain, ePAGs and Eurordis have established a strategy for tailoring the Webinar programs for patient organisations. The strategy is devoted for the definition of comprehensive programs composed of several sessions on very rare diseases given the high necessity for in-depth knowledge sharing.