Last 31st of May has been held the closing meeting of the European Rare Blood Disorders Platform (ENROL), the pan-European patient registry of the European Reference Network ERN-EuroBloodNet. The agenda was organised aiming to wrap up the first phase of the project, finalising on the 31st of May.
One hundred participants, including physicians, patients associations' representatives, and institutional stakeholders, from 15 EU Member States participated, showing a growing interest in this initiative.
The ENROL team has prepared a document including the outcomes of the meeting. We invite you to read it!
Looking forward to seeing the future achievements of the project!