ERN-EuroBloodNet
 
Newsletter - April 2021
 

Keep informed about the latest information on Rare Hematological Diseases!

 
 
NEWS
 
 
 
The analysis of the first period of ERNs progress has been published!
 
 

European Reference Networks: challenges and opportunities is the name of the manuscript that comprises the analysis of the actual state and future of the ERNs

 
 
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Published on EuroBloodNet's Edu YouTube channel: Educational videos for people living with SCD!!
 
 

Videos of the SCD Patients' Educational Session at ASCAT 2020 are now published on the YouTube Educational Channel of the ERN, EuroBloodNet's Edu

 
 
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The importance of Next Generation Sequencing for the diagnosis of Rare Anemia Disorders
 
 

A study under the name “Usefulness of NGS for Diagnosis of Dominant Beta-Thalassemia and Unstable Hemoglobinopathies in Five Clinical Cases” has been recently published. Part of the team is composed by three different ERN-EuroBloodNet members.

 
 
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The Sickle Cell Disease Patients' Priorities Blog has been launched!
 

We invite everyone with sickle cell disease to send us entries for the blog

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Registration for Topic on Focus for Patients’ Organization on Cutaneous Lymphoma is open!
 

The comprehensive webinar program on CL targeting patients’ associations will start the 26th of April

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